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THE GEORGIA MICROBOARDS ASSOCIATION NEWSLETTER

Volume 1 - August, 2013 - Feature Article: Betty Thompson's Circle of Friends
http://archive.constantcontact.com/fs139/1114362673391/archive/1116631997525.html

Volume 2 - March, 2014 - Feature Article: The Gifts of Strangers
 http://archive.constantcontact.com/fs139/1114362673391/archive/1116960117500.html

Volume 3 - August, 2014 - Feature Article:I Didn't Know My Daughter Was A Perfectionist
http://archive.constantcontact.com/fs139/1114362673391/archive/1117952653796.html 

Volume 4 - April 30, 2015 - Feature Article: An Inspirational and Energizing Day
http://archive.constantcontact.com/fs139/1114362673391/archive/1119821547591.html  

Volume 5 - October, 2015 - Feature Article: The Power of Asking
 http://archive.constantcontact.com/fs139/1114362673391/archive/1122130184328.html

Volume 6 - February, 2016 - Feature Article: The Hurricane Paintings
http://archive.constantcontact.com/fs139/1114362673391/archive/1123789611060.html


ACTION FOR INCLUSION - Now available in Spanish
http://www.inclusion.com/accion.html

VIDEO: Campaign for Full Citizenship - Georgia Options
 https://archive.org/details/campaignforfullcitizenship

Child Disability Starter Kit - Social Security Administration - For Children Under 18
https://www.ssa.gov/disability/disability_starter_kits_child_eng.htm   

An Affirmation of Community; A Revolution of Vision And Goals - Creating a Community to Support All People Including Those With Disabilities by Thomas Nerney, Richard F. Crowley, with Bruce Kappel
http://www.centerforself-determination.com/docs/sd/communityPrint1.pdf

"YOU GET PROUD BY PRACTICING" Poem by Laura Hershey
http://disabilityvisibilityproject.com/2014/12/01/poem-by-laura-hershey-you-get-proud-by-practicing/

THE GEORGIA COUNCIL ON DEVELOPMENTAL DISABILITIES
"MAKING A DIFFERENCE MAGAZINE"
http://www.gcdd.org/news-a-media/making-a-difference-magazine.html

BEAUTIFUL JUSTICE - Beth Mount
https://www.youtube.com/watch?v=nivBPmOvviY

How to choose a Trustee or a Co-Trustee for a Special Needs Trust by Attorney Mark Biernath
http://nadlerbiernath.com/index.aspx?TypeContent=CUSTOMPAGEARTICLE&custom_pages_articlesID=1333

Please take the time to watch these two new videos - They will make your heart sing!
"What I'd Say" https://www.youtube.com/watch?v=AsCl1LTKPuk&feature=youtu.be 
"Naturally" https://www.youtube.com/watch?v=qzd8cljTjDw

Rebecca Beayni - Dancer - Here is her website with videos  www.rebeccabeayni.com

Judith Snow - Teacher - http://ollibean.com/2013/09/01/judith-snow-2/

University of Georgia considers program for intellectually disabled students | USA TODAY College
http://college.usatoday.com/2015/01/14/u-of-georgia-considers-program-for-intellectually-disabled-students/

NO BARRIER BAT MITZVAH https://www.youtube.com/watch?v=GY9OaoHFAJQ

FLORIDA INJURED BABY - Guidance for you and your injured child http://www.floridainjuredbaby.org/

WorkWorks - Institute on Human Development and Disabilities
UNIVERSITY OF GEORGIA NATIONAL WEB-BASED EMPLOYMENT SERVICES TRAINING
The University of Georgia’s web-based program is a certificate program designed for employment specialists and job coaches who assist persons with significant disabilities to direct their own support systems and to become successfully employed in careers of choice.  Detailed information about the course and registration may found at our website (www.ihdd.uga.edu) or by contacting Phil Chase (pchase@uga.edu) or Adele Patrick (apatrick@uga.edu).  

THE GEORGIA MICROBOARDS ASSOCIATION CAN PROVIDE A VARIETY OF 
FACILITATORS TO CONDUCT A PATH IN YOUR COMMUNITY.
A PATH is the beginning step in the formation of a Microboard and we will assist you making all of 
the necessary arrangements for the PATH.

VIDEO CLIP OF A PATH MEEETINGhttps://www.youtube.com/watch?v=f6zzqzP4ZO8&feature=youtu.be

VIDEO CLIPS on PERSON-CENTERED PLANNING
https://www.youtube.com/watch?v=U5uRV5chkwQ

VIDEO CLIPS - PERSON-CENTERED PLANNING WITH GRAPHICS
https://www.youtube.com/watch?v=HHdYXD7aSaI

VIDEO CLIPS - PATH PLANNING - THE VISION
https://www.youtube.com/watch?v=yJ7ER28iT-g

VIDEO CLIPS - PERSON-CENTERED PLANNING AT AADD (Stacey Ramirez)
https://www.youtube.com/watch?v=UQ-WmSI7ymM

VIDEO CLIPS - The Story of Jan Bricker, Accomplished Gymnist
https://docs.google.com/file/d/0ByFUzo9KwryWWkRwUEw4bmZNaVk/view?sle=true

VIDEO CLIPS -  David Pitonyak, PhD. Website: http://www.dimagine.com/

* On Being Hardwired for Belonging 
http://www.youtube.com/watch?v=-sc5rzCGK20
David Pitonyak reflects on the “social brain” being hardwired for belonging and the implications of loneliness and 
disconnection for people with disabilities

* On Coverage vs. Relationships
http://www.youtube.com/watch?v=AqPPGfO4Qsw
David Pitonyak reflects on the difference between authentic relationships, and the system-wide approach to providing
“coverage.” 

100 Years of Georgia Disability History - 
http://www.gcdd.org/blogs/gcdd-blog/2656-history-of-disability-rights-going-forward-by-knowing-where-we-ve-been.html

KEEPING PROMISES: GEORGIA STORIES" by Gillian Russell Grable
This newly released book highlights stories that reveal the capacity for both paid and natural 
support of family, friends and neighbors to enable people with developmental disabilities to live 
in their homes and thrive in their communities.  

Author Gillian Russell Grable drove along roads and highways to visit families and listen to their 
stories.  You will meet in these narratives people with developmental disabilities and their family 
members: Susannah and Sam; David and Marguerite; Ethel and Belinda; Sarah and Robbie; 
Eddie and Josephine; Gennet and Effie; and Jimmy and Madge. 

Our hope is that you . . .

  • Feel the texture of the presence of Susannah, David, Ethel, and Sarah on their families, 
          friends, neighbors, and faith communities;

  • Savor the love and faithfulness these families honor as they endeavor to fulfill their 
          promises to each other;

  • Consider what roles legislators, community leaders, and ordinary citizens might choose to support families 
          to take care of each other;

  • Appreciate Georgia towns where the rich fabric of community life includes people with developmental disabilities 
          who can discover a way to make a contribution when relationships offer support for the opportunity to do so.

  • While reading these stories, one might consider a question posed by John O’Brien: “What level of organizing 
          among neighbors, friends, family, faith community members, and paid services makes a good future more likely for 
          each family?”

About the Author:  Gillian Russell Grable has had the privilege of learning with people with disabilities, families, and 
community members for over 30 years. She delights in introducing people to one another and watching people find and 
receive each other’s’ gifts.

Listening to people and telling stories has been a way for Gillian to give voice to the deep joy of belonging and the 
searing pain of isolation people with disabilities and their families often experience. Gillian works to create a world 
where we are all cherished and driven to live by our deep humanity.

The cost of the book is $29.99 plus tax and shipping.  Bulk discounts of 5 or more books is available.
1 – 4 Books           0%        $29.99
5 – 9 Books         10%        $26.99
10 – 30 Books     15%        $25.49
31 – 50 Books     25%        $22.49
Over 50               40%        $17.99

Tax should be applied for the county the shipment will go to (tax is not applicable for out of state purchases).  
Shipping for up to 4 books is a flat rate of $6.95.  For orders of 5 or more books, please contact Becky Brightwell for a 
quote (bbrightw@uga.edu). 

To purchase the book:
Send a check payable to UGA /IHDD and mail to:
IHDD / UGA
Media Fulfillment Dept. / G32B
850 College Station Road
Athens, GA  30602
To pay by credit card, please call 706-542-6089 and speak with Vici Payne.

A MOM, A SON WITH DOWN SYNDROME - AND THE LOVE THAT MADE A 'CURSE' A GIFT
http://nwpr.org/post/mom-son-down-syndrome-and-love-made-curse-gift

REBECCA BEAYNI ​- " I AM BECAUSE WE ARE" http://www.tmw.to/members.php?uri=rebecca-beayni
Video "REVEL IN THE LIGHT"  Video - https://www.youtube.com/watch?v=U74POFNXw5U

LONELINESS IS DEADLY 
http://www.slate.com/articles/health_and_science/medical_examiner/2013/08/dangers_of_loneliness_social_isolation_is_deadlier_than_obesity.html

JUDITH SNOW - http://ollibean.com/2013/09/01/judith-snow-2/
Judith Snow, MA is a social innovator and an advocate for Inclusion – communities that welcome the participation 
of a wide diversity of people. She is also a visual artist and Founding Director of Laser Eagles Art Guild, an 
organization making creative activity available through personal assistance to artists with diverse ability
www.lasereagles.net.  

WINNER OF MY GENERATION: YOUTH, THE ADA, AND ART CONTEST
"I (Don't) Care" Poem by Kathryn Carroll 
Kathryn Carroll is currently pursuing a law degree at St. John’s University with the intention of becoming a civil
rights or human rights lawyer. The ADA expanded Carroll's view of the world and as a result, was the inspiration
for this poem.  http://www.adalegacy.com/ada25 

IMPROVING EXCEPTIONAL RATE PROCESS
https://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/related_files/site_page/Improving%20Exceptional%20Rate%20Process.pdf

THINK COLLEGE - Inclusive Post-Secondary Education for Adults with Developmental Disabilities
http://www.thinkcollege.net/administrator/components/com_resdb/files/A%20Promising%20Path%20reduced.pdf 

WE CONNECT NOW
We Connect Now is dedicated to uniting people interested in rights and issues affecting people with disabilties, with
particular emphasis on college students and access to higher education and employment issues.
http://weconnectnow.wordpress.com/ 

NEW MOBILITY - The magazine for active wheelchair users
Bob Kafka & Stephanie Thomas: Turning the Queen Mary
http://www.newmobility.com/2007/01/bob-kafka-stephanie-thomas-turning-the-queen-mary/

CENTER FOR CIVIL AND HUMAN RIGHTS MUSEUM, ATLANTA, GA
http://www.civilandhumanrights.org/

GETTING REAL IN GEORGIA
The Georgia Council on Developmental Disabilities' Real Communities' projects are making a difference, bringing 
people with and without disabilities together in Duluth, Milton, Macon, Clarkston and Savannah through various 
initiatives and support. Video produced and photographed by Robin Nelson for GCDD
https://www.youtube.com/watch?v=bmmrlZbz4_c

END THE R WORD
Special Olympics at UGA is a student organization on campus that assists the local Special Olympics program in Athens. 
Students and staff, including Football Coach Mark Richt, have pledged to end the R-word! Please join us in ending 
this derogatory term.  https://www.youtube.com/watch?v=WBn65I4ravo

"The R-Word" by Heather Kirn Lanier (The SUN – May 2015 Issue 473) Available on Line at:
http://thesunmagazine.org/issues/473/the_r_word

FRONTLINE INITIATIVE, Publication of the National Alliance for Direct Support Professionals
Social Capital, the Real Route to Inclusion
http://www.nysacra.org/nysacra/pdf/FI_Social_Capital_FINAL.pdf

PROXY CARE GUIDE - Georgia Council on Developmental Disabilities 
Hard copies can be obtained through the GCDD main phone line at (404) 657-2126. 
http://www.gcdd.org/images/Reports/proxy%20care%20guide%20-%20gcdd.pdf

POEM: A RAINY MORNING by Ted Kooser
http://writersalmanac.publicradio.org/index.php?date=2014/04/25

DISABLED PEOPLE'S FORGOTTEN REVOLUTION

As the nation prepares to commemorate the 25th anniversary of the Americans with Disabilities Act (ADA) in 2015, 
the Paul K. Longmore Institute will celebrate the unique Bay Area contributions to disability rights. Our ambitious 
exhibit “Patient No More!” will focus on what is known as “the 504 occupation” in 1977 when more than one hundred
brave women and men paved the way for so many of us and passing the ADA thirteen years later. We must return 
to thinking of the Americans with Disabilities Act as the product of grassroots activism and disabled people’s 
political savvy rather than a mandate somehow passed down from on high. 
http://longmoreinstitute.wordpress.com/2014/04/10/disabled-peoples-forgotten-revolution/

INCLUSION PRESS INTERNATIONAL - Inclusion, Community, Diversity
Founding Publishers: Jack Pearpoint & Marsha Forest - Inclusion Press creates person centered resource 
materials for training events, public schools, high schools, community colleges, universities, human service agencies
health organizations, government agencies, families, First Nations organizations - nationally and internationally.
http://www.inclusion.com/inclusionpress.html

PHOTO JOURNALIST DAN HABIB
Photojournalist Dan Habib didn't give much thought to disability — until his son Samuel was born with cerebral palsy. 
In this emotional talk, the disability-rights advocate explains his family's fight to ensure an inclusive education for 
Samuel, and how inclusion benefits not just Samuel and those who are included, but all of us.  
http://www.youtube.com/watch?v=izkN5vLbnw8

INSPIRATIONAL VIDEO - "DANCE IN THE SHADOW" - Rebecca Beayni is a 30 year old woman who 
is an active communicator (despite the fact that she cannot speak), a recognized dancer, painter, and an inspiring 
presenter in the education field. Her life's work is aimed at inviting people to dream of a more compassionate 
society where everyone's gifts are recognized and welcomed. Rebecca deeply values the importance of 
interdependence in her own life and her personal witness speaks to the necessity for deep connections and 
solid relationships for all people.
http://www.inclusion.com/dvddanceintheshadow.html

STORYLINE MOTION PICTURES - Mixed Media DVD with curriculum designed for 
grade school educators - http://www.storylinemotionpictures.com/

ADL Curriculum K-12 - Equal Treatment, Equal Access: Raising Awareness  
http://archive.adl.org/education/curriculum_connections/fall_2005/default.html

GEORGIA DEPARTMENT OF BEHAVIORAL HEALTH AND DEVELOPMENTAL DISABILITIES 
PARTICIPANT- DIRECTED WAIVER SERVICES & BUDGETS TRAINING - 
http://dbhdd.cvent.com/events/fy14-participant-direction-services-and-budgets/event-summary-
4cc64a6da20b4f0c93fd5da5e45bfb1c.aspx

“THE MATCHING TOOL” was designed to help you recruit support staff for an individual along several 
dimensions, including interests, values, and temperament.  It  was developed with John O'Brien and is based 
on the idea that who shows up matters. To download this and other helpful articles/publications/videos, 
visit the website: IMAGINE created by David Pitonyak at  http://www.dimagine.com/index.html 

WATCH THE VIDEO: "A Path to a Better Quality of Life" produced by the Illinois Association 
of Microboards and Cooperatives  http://www.iambc.org/

THE PAIN OF EXCLUSION - by Kipling D. Williams, Scientific American
Even trivial episodes of ostracism can shatter your sense of self. But you can lessen-and learn from the pain.
  http://www.scientificamerican.com/article/the-pain-of-exclusion/  
            
"Workbook for Self-Directing" Developed by the Georgia Council on Developmental Disabilities go to: 
http://dbhdd.georgia.gov/sites/dbhdd.georgia.gov/files/imported/DBHDD/Files/Workbook%20for%20Self%20Directing%20Final.pdf

"A Guide for Self-Directing NOW and COMP Waiver Services" Developed by the Georgia Council on Developmental Disabilities and the Georgia Department of Behavioral Health and Developmental Disabilities. go to: 
http://www.gcdd.org/images/Reports/SELF-DIRECTING-GUIDE-FOR-FAMILIES-Final.pdf

"Find, Choose & Keep Great Direct Support Professionals- a toolkit."
Do you need help with Finding, Hiring and Retaining great direct support professionals? The University 
of Minnesota has developed two great workbooks on hiring Direct Support Professionals, and the download 
is free. http://www.state.il.us/agency/icdd/communicating/pdf/toolkitforpeoplewithdisabilites[1].pdf

"Best Practices When Interacting with Persons with Disabilities"
This booklet provides guidance to State of Georgia employees so they can effectively interact and assist 
individuals with varying disabilities. We hope you will consider how implementing the tips in this booklet is the 
direct route to creating a customer-oriented culture that includes individuals with disabilities.  
http://ada.georgia.gov/documents/best-practices-when-interacting-persons-disabilities-0

Georgia’s Emergency Preparedness for Individuals with Disabilities and Elderly 
Persons http://www.gcdd.org/wp-content/uploads/2010/09/emergencypreparedness.pdf 

A Few Words about PEOPLE FIRST LANGUAGE by Kathie Snow 
http://www.disabilityisnatural.com/images/PDF/pfl09.pdf

For a copy of "Anything is Possible! Beyond High School: College and More!" Revolutionary 
Common Sense by Kathie Snow, Disability is Natural, go to: 
http://www.disabilityisnatural.com/~ko6148om/images/PDF/beyondhs.pdf  

For an Issue of the NJCDD's 'People & Families' magazine, go to: 
http://www.njcdd.org/Publications/publicationshome.html 

To view "And You Say You're His Friend?" by Dave Hingsburger, go to:
http://www.openfuturelearning.org/blog/index.php
            Georgia MICROBOARDS Association 

The Georgia Microboards Association is funded in part by grants from the Division of Behavioral Health and Developmental Disabilities 
and by the Georgia Council on Developmental Disabilities